• info@dee-p.org

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DEEP Collaborative

DEEP's Who, What, & How

Who We Are

Global collaborative dedicated to improving outcomes for DEEs and other SNIs.

What We Do

Educate and empower caregivers and clinicians, conduct cross-disease research, and advocate for the DEE and SNI voices.

How We Do It

The collective strength of our partners: caregivers, patient advocacy leaders, clinicians, researchers, and industry.

Partner Value and Benefits

A free resource built for the community, by the community

Staff extension and increased team capacity

Ready to engage education, support, advocacy, and research opportunities

Patient Advocacy Group Driven Proposals

Expanded reach, visibility, and promotion for your organization’s disorder

FDA and regulator engagement opportunities

Co-branded resources and programming

Interconnected network to engage with and learn from

Reduced duplication and increased efficiency

Closed listserv and quarterly meetings

DEEP Collaborative Partners

Founding Partners

PCDH19 Alliance
LGS Foundation | Lennox Gastaut Syndrome
Hypothalamic Hamartomas Hope
FamilieSCN2A Foundation
TESS Research Foundation
International SCN8A Alliance Logo
Dup15q Alliance
SLC6A1 Connect
Hope 4 Harper
Dravet Syndrome Foundation
Pediatric Epilepsy Surgery Alliance
International Foundation for CDKL5 Research
Ring 14 USA
KCNQ2 Cure Alliance
Cure SYNGAP1